Here we go again, an expression of thoughts and inner feelings / emotions that are around on a daily basis. Some more pronounced than others, on days in question, dependent upon the circumstances.
It is a tricky, winding path this journey is currently following. Moments of great fun, laughter and joy. Others of bitter frustration and anger when misunderstood, ignored, or intentionally avoided and sidelined. Those one or two who avoid me, I think, mainly do so out of a feared concern regarding their lack of ability to cope with / handle my possible response to them. There is a wealth of misunderstanding, some no doubt on my part, which I suppose is understandable, in relation to the manner of social communication with the likes of myself, at this stage of the dementia journey. Fortunately my wife and carer understands my current need for simplicity and straight talking when dealing with others. Unfortunately not everyone else can.
The above may seem a bit of a self centred approach / rant. It is to a certain extent, yet this perceived need for simple straight forward communication is a NEED, to minimise confusion. Confusion leads to frustration and misuderstanding and the consequence of this sometimes leads to others being offended by my reaction.
I hope that any fellow travellers on this journey, be they carers or fellow dementiates, who may read this blog, get some comfort from knowing that, if they are experiencing these irritations or the consequences of the same, they are not travelling alone!
JSAFGA
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